Sunday, December 30, 2007

Love at first sight

I think i have fallen in love.
Here he is.....

Anuschka Flap Shoulder - Premium Rose Antique

Hand Painted Leather


"I wish, I may,I wish,I might.

Make this bag fall from the sky tonight."

I definitely will not sleep for weeks to come.

Journey towards sound

Just a reminder on how much mama loves you & will always be there.
No matter what,my little bionic man.

Before: Baba with Daniel

note-to-self: notice the bald head?..never ever shave his head again!!

After: Grandma with Daniel

Friday, December 28, 2007

What Is That Red Blinking Light On His Head?

This is actually a question that we got asked a lot..There is a little red blinking light on Daniel's ear level microphone that lets us know that the implant is picking up sound - and apparently it has has turned some heads! Thinking back I don't even think i have came across an implantee in Malaysia except in the hospital...hmmmm

When people have asked about Daniel's implant, I think I have told every person a different story. I have never known quite what to say before (Do i tell them to mind their own business?Do I just call it a fancy hearing aid? Do I go into a lot of detail? Am I talking over or under people's heads?) - but I think I've figured it out! Here's what I'm going to tell anyone else who asks me, "what's that on his ear?" (or words to that effect...)

"It's called a Cochlear Implant. It is like a hearing aid. But, whereas a hearing aid is an entirely external thing, part of this device is actually implanted in his head. Plus, a hearing aid's job is just to amplify sound. A Cochlear Implant goes much further - it actually picks sound up with a microphone (the blinking light part), translates that sound into electrical impulses (using this processor on his back), and sends that information to his brain (through this magnet on his head) which then interpret those impulses and understands them as sounds.


OR

i can follow the explanation from a 4 year old boy i met at the hospital the other day....Big brother and Little brother were playing in a little house that was inthe waiting room.A girl who was probably 20 something asked Big brother what was on Little brothers head. I was just about to jump in and offer an explanation when Big brother(as confident as anything) said simply, "It's a Cochlear Implant, it helps him hear."

I guess I could learn a thing or two from him...

******
its always hard to explain how the implants work even with diagrams. I think this animation is the best so far.

http://69.20.19.211/cdrh/cochlear/implantpop.html

******

Wednesday, December 26, 2007

Bon anniversaire Fariza!!

fariza and loady

* * * * *

Faweeza dearie,
On your birthday,I wish for you the fulfillment of all your fondest dreams.
I hope that for every candle on your cake you get a wonderful surprise.
I wish for you that whatever you want most in life,it comes to you, just the way you imagined it, or better.
I hope you get as much pleasure from our friendship as I do.
I wish we were sisters, so I could have known you from the beginning.
I look forward to enjoying our friendship for many more of your birthdays.
I'm so glad you were born, because you brighten my life and fill it with joy.
Happy Birthday dearie!

Huggies Ultra.... :)
Love ,
Sya

Tuesday, December 18, 2007

A**hole you are...

I know im relevantly new at this and shouldn't post angry posts just yet....but....YOU ARE AN A**HOLE....I hope you die this christmas and rot in bloody hell.... ho! ho! ho!

go die assh*le


ok rant over...breath-in...breath-out....

Sunday, December 16, 2007

Italy here we come...

Welcome To Holland

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.After months of eager anticipation, the day finally arrives. You pack your bags and off you go.Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills... .and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
But maybe...just maybe.....we are going off to italy...but with an unexpected vacation to Holland first....mamamia....Italy here we come!


“When one door of happiness closes, another opens; but often we look so long at the closed door, that we do not see the one which has been opened.
kuddos to Emily Perl Kingsley and Helen Keller

Wooohooo...here we go..

This is my first ever attempt to blog.....lets hope to god I'll keep it up and it doesn't turn into one of my abandoned projects!!